Gorham's Disease Musculoskeletal Disorders Conditions and Diseases

Also called disappearing bone disease. Extensive loss of calcium from a single bone so that it cannot be seen on x-ray. Any bone can be involved but the upper arm, shoulder, and jaw are most frequent. This type of selective decalcification is sometimes associated with the presence of an hemangioma, a knot of distended blood vessels. The synonyms for this condition include invisible bone disease, vanishing bone disease, phantom bone disease and massive osteolysis.

• Gorham's Disease or Massive Osteolysis - Supporting those affected by this rare condition. From the AFAS musculoskeletal disorders Association. Available in English, French, and Spanish.
• The Lymphangiomatosis Foundation - Organization working on finding a cure for lymphangiomatosis conditions and diseases and Gorham's disease through research, fundraising, and education.
• Jake Moore Memorial Site - Personal page about a young man who had musculoskeletal disorders vanishing bone disease. Offers a support forum.
• Lymphangiomatosis and Gorham's Vanishing Bone Disease - Provides general information about the condition, a personal account, including musculoskeletal disorders pictures and x-rays. Also offers a message board.
• Management of a Fracture in a Known Case of Gorham's Vanishing Bone Disease - Provides an introduction, case presentation, discussion and conclusion. Aimed at conditions and diseases medical professionals.

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