Rare Disorders Conditions and Diseases Health

A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.

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Meige Syndrome@ Thrombocytopenia Absent Radius Syndrome@ Alternating Hemiplegia@ Moyamoya Stiff-Person Syndrome@ Ablepharon-Macrostomia Syndrome@ Olivopontocerebellar Atrophy@ Bardet-Biedl Syndrome@ Velo-Cardio-Facial Syndrome@ Gerstmann Syndrome@ Aase Syndrome@ Noonan Syndrome@ Pemphigoid Gustatory Sweating@ Mannosidosis@ Corticobasal Degeneration@ Floating-Harbor Syndrome@ Robinow Syndrome@ Subacute Sclerosing Panencephalitis@ Familial Dysautonomia@ Tay-Sachs@ Ollier Disease Wilson's Disease@ Abetalipoproteinemia@ Trichothiodystrophy@ Opitz Syndrome@ Mastocytosis@ Fanconi Anemia@ Pallister Killian Mosaic Syndrome@ Alagille Syndrome@ Kernicterus@ Lissencephaly@ Glutaricaciduria@ Treacher Collins Syndrome@ Proteus Syndrome@ Pemphigus Shwachman Syndrome@ Barth Syndrome Retinoblastoma@ Multiple Hereditary Exostoses@ Rickets@ Smith-Magenis Syndrome@ Joubert Syndrome@ Galactosemia@ Adie Syndrome@ Arthrogryposis@ Botulism@ WAGR Syndrome@ Progeria Rett's Syndrome@ Myotonic Dystrophy@ Stickler's Syndrome@ Tuberous Sclerosis@ Horner Syndrome@ Homocystinuria@ Xeroderma Pigmentosum@ Hidradenitis Suppurativa@ Pseudoxanthoma Elasticum@ Dandy Walker Syndrome@ Propionic Acidemia@ Cerebrocostomandibular Syndrome Sanfilippo Syndrome@ Friedreich Ataxia@ Kearns Sayre Syndrome@ Fibrodysplasia Ossificans Progressiva@ Tyrosinemia Smith Lemli Opitz Syndrome@ Tourette Syndrome@ Dercum Disease@ Crigler-Najjar Syndrome@ Tangier@ Mobius Syndrome@ Turner Syndrome@ Lesch-Nyhan Syndrome@ Hemophilia@ Leigh's@

Dystonia@ Laurence-Moon Syndrome@ DiGeorge Syndrome@ Fabry's@ Alström Syndrome Aicardi Syndrome Zollinger-Ellison Syndrome@ Pick Disease of the Brain@ Cyclic Vomiting Syndrome@ Degos Usher Syndrome@ Hydrocephalus@ Madelung's@ Schizencephaly@ Klippel-Feil Syndrome@ Neuroleptic Malignant Syndrome@ Weaver Syndrome@ Cleidocranial Dysplasia Gaucher's@ Thalassemia@ Russell Silver Syndrome@ Erythromelalgia Refsum's@ Lowe Syndrome@ Charcot-Marie-Tooth Disease@ Hemihypertrophy@ Aarskog Syndrome@ Costello Syndrome@ Guillain-Barre Syndrome@ Neurofibromatosis@ Hallervorden-Spatz Syndrome@ Porphyrias@ VACTERL Association Ehlers-Danlos Syndrome@ Osteogenesis Imperfecta@ Rubinstein-Taybi Syndrome Melorheostosis Cri du Chat Syndrome@ Coffin Lowry Syndrome@ Marfan Syndrome@ Incontinentia Pigmenti@ Apert Syndrome@ Wegener's Granulomatosis Prader-Willi Syndrome@ Idiopathic Pulmonary Hemosiderosis@ Isaacs Syndrome@ Hereditary Angioedema@ Porencephaly@ Cystinosis Ataxia@ Zellweger Syndrome@ Craniofrontonasal Dysplasia@ Cornelia De Lange Syndrome@ Dubowitz Syndrome@ Pallister-Hall Syndrome@ Spina Bifida@ Triploidy Cockayne Syndrome@ Waardenburg Syndrome@ Kluver-Bucy Syndrome@ Adrenoleukodystrophy@ Celiac@ Behcet's Syndrome@ Williams Syndrome@ Niemann-Pick@ Nail Patella Syndrome@ Sturge-Weber Syndrome@ Agnosia Pierre Robin Syndrome Blastomycosis@ Prune Belly Syndrome@ POEMS Syndrome@ Narcolepsy@ Huntington's@ Jacobsen Syndrome Phenylketonuria

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National Organization for Rare Disorders, Inc. - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.

• Information Centre for Rare Diseases and Orphan Drugs - Offers an Internet portal. Includes news, forums, rare health disease and health orphan drug information and registration forms
• Cherubs - A non-profit support group for the families and health medical care providers of children and adults health born with Congenital Diaphragmatic Hernia.
• Fibrous Dysplasia Support Online - For those seeking support and information concerning the health rare bone diseases: fibrous dysplasia, McCune Albright Syndrome health and Cherubism.
• Kindler Syndrome - An article and case study of this rare conditions and diseases disease. Includes links.
• Human Growth Foundation - Information about growth-related disorders through education, research, and conditions and diseases health advocacy. Member driven organization.
• Contact a Family - Information about this organization as well as the conditions and diseases CaF directory of specific conditions and rare disorders. conditions and diseases Also details about the Rare Disorders Alliance - conditions and diseases UK.
• European Organisation for Rare Diseases - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
• Office of Rare Diseases - Information on more than 6000 rare diseases, including current rare disorders research, publications from scientific and medical journals, completed research, rare disorders ongoing studies, and patient support groups.

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